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Improving the quality of life of people with Down syndrome

The INCLUDE Data Coordinating Center (DCC) is making it easier for scientists and the Down syndrome community to work together. Matching the latest technology with shareable resources, researchers use the Data Hub to enhance healthcare and change lives.

Two individuals with Down syndrome

Enabling discovery through collaborative resources, data integration and open science.

The INCLUDE DCC has created a cloud-based, open, digital platform to easily access and share Down syndrome resources to maximize and accelerate research.

Mock up of the INCLUDE Data Hub
Explore
Explore
View and explore available data and biospecimens using visualization tools.
Build
Build
Search and filter available studies and build cohorts for analysis.
Integrate
Integrate
Integrate with other data analysis platforms.

Collaborating with families & self advocates

The INCLUDE DCC works closely with DS-Connect®: The Down Syndrome Registry.

  • Find medical providers with experience with Down syndrome.
  • Learn more about participating in clinical studies.
  • Securely register your or a loved one’s health information to help researchers learn more about Down syndrome.
  • Connect with researchers and their projects.

The registry is a helpful source of information for people with Down syndrome, their families and researchers.

Family of a child with Down syndrome share time together