Frequently Asked Questions (FAQ)

As we’ve worked to build the INCLUDE Data Coordinating Center, our team has received valuable feedback from across the Down syndrome community. Here, we’ve gathered a list of the most frequently asked questions that have been submitted by community groups, self advocates, and families.

If you would like any additional information about the NIH INCLUDE Program or the INCLUDE DCC, feel free to contact us.

Do you have additional questions about using the INCLUDE Data Hub? Visit the Help Center.

A young man with Down syndrome and a man without Down syndrome with their arms around each others' shoulders

The goal of the National Institutes of Health (NIH) INCLUDE Project is to improve the health and quality of life of people with Down syndrome. INCLUDE stands for INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE.

To learn more about the NIH INCLUDE Project, read the INCLUDE Project Frequently Asked Questions