Newsroom

A young girl with Down syndrome wearing headphones and sitting at a table

The Black Down Syndrome Association (BDSA) is hosting its first Family Reunion Conference from November 7th - 9th, 2025 at the Grand Prairie Convention Center at EpicCentral in Grand Prairie, Texas.

May 06, 2025

The INCLUDE Data Coordinating Center (DCC) hosted a virtual Spring INCLUDE Data Hub Webinar on Wednesday, April 16, 2025, from 12:00 – 2:00 PM ET. You can view the ...

Apr 23, 2025

The February 2025 release introduced study metadata for newly added studies in the INCLUDE Data Coordinating Center (DCC), along with updates to existing study and dataset metadata. Additionally, dataset groupings ...

Mar 26, 2025

On March 21st, 2025, also known as World Down Syndrome Day, the National Institutes of Health (NIH) announced the launch of the new and improved DS-Connect®: The Down ...

Mar 24, 2025

On March 8, 2025, the Emory University School of Medicine's Down Syndrome Center hosted the 2025 Emory Down Syndrome Research Symposium at the Emory Conference Center in Atlanta, Georgia ...

Mar 10, 2025

The inaugural INCLUDE DS-CDP Network meeting took place virtually on February 11 and 12, 2025, bringing together an unprecedented group of experts to facilitate research that will impact the ...

Feb 19, 2025

The INCLUDE Clinical Data Management Workshop was held virtually on Monday, February 10, 2025, and was organized by the NIH INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to ...

Feb 14, 2025

Join the INCLUDE Data Coordinating Center (DCC) for a virtual INCLUDE Data Hub Webinar on Wednesday, April 16, 2025, from 12:00 - 2:00 pm ET.

Feb 14, 2025

Get ready for an exciting day of learning and connection at the Emory Down Syndrome Parent & Caregiver Research Symposium on Saturday, March 8!

Feb 05, 2025

The INCLUDE Data Coordinating Center host its office hours on the second Wednesday of each month from 12:00 to 1:00 pm ET.

Jan 27, 2025

This workshop, organized by the NIH INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project will focus on common data elements, clinical data ontologies, data ...

Jan 22, 2025

Exciting announcement: the new and improved DS-Connect®: The Down Syndrome Registry, is live!DS-Connect is currently managed by the University of Colorado and offers upgraded features to ...

Jan 21, 2025

The INCLUDE Data Coordinating Center (DCC) and Kids First Data Resource Center (DRC) hosted this year’s New Research Gold Rush Ancillary Event on Thursday, November 7, 2024, during the ...

Nov 12, 2024

The INCLUDE Data Coordinating Center (DCC) is excited to host a two-week immersive summer course in data science, Data Science for Developing Scholars in Down Syndrome Research (DS3), from ...

Oct 31, 2024

Based on recommendations from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Office of Data Science and Sharing, the INCLUDE Data Coordinating Center (DCC) and ...

Oct 31, 2024

The National Institutes of Health (NIH) recently launched a new long-term study led by NIH’s INCLUDE Project to observe and track health data of people with Down syndrome ...

Oct 30, 2024

Join the INCLUDE Data Coordinating Center (DCC) for a virtual INCLUDE Data Hub Webinar on Wednesday, October 16, 2024, from 3:00 pm - 5:00 pm ET. 

Oct 23, 2024

Join the INCLUDE Data Coordinating Center (DCC) at the ASHG Annual Meeting in Denver, Colorado from November 5-9, 2024. You can stop by our booth and register for our ...

Oct 10, 2024

The INCLUDE Data Coordinating Center (DCC) attended the 2024 Down Syndrome Diagnosis Network (DSDN) Rockin' Mom Retreat in Las Vegas, Nevada from September 27-28, 2024.

Oct 04, 2024

The INCLUDE DCC attended the National Down Syndrome Congress (NDSC) Convention and Down Syndrome Medical Interest Group (DSMIG) Symposium from July 25-28, 2024 in Phoenix, AZ.

Aug 16, 2024

The INCLUDE Data Hub has released new data to the INCLUDE community!

Aug 14, 2024

The INCLUDE Data Coordinating Center (DCC)hosted the third annual in-person, immersive summer course in data sciences known as the Data Science for Developing Scholars in Down Syndrome Research ...

Jul 26, 2024

Trisomy 21 Research Society (T21RS) International Conference celebrated its 10th anniversary and 5th international conference this year in Rome, Italy from June 5-8, 2024. Hundreds of researchers, clinicians, organizations ...

Jun 17, 2024

The NIH INCLUDE (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project Team invites you to join us for a dynamic DEIA webinar on Community Engagement ...

May 16, 2024