Newsroom

Join us in Dallas, TX, from July 24–27! Whether you're stopping by our booth or attending one of our presentations, we look forward to connecting with you throughout ...

The next NICHD Advisory Council will be on Monday, June 9th from 12 - 3:45 PM ET.

The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS) has a new, revamped website. Visit to learn more!

The Black Down Syndrome Association (BDSA) is hosting its first Family Reunion Conference from November 7th - 9th, 2025 at the Grand Prairie Convention Center at EpicCentral in Grand Prairie, Texas.

The INCLUDE Data Coordinating Center (DCC) hosted a virtual Spring INCLUDE Data Hub Webinar on Wednesday, April 16, 2025, from 12:00 – 2:00 PM ET. You can view the ...

The February 2025 release introduced study metadata for newly added studies in the INCLUDE Data Coordinating Center (DCC), along with updates to existing study and dataset metadata. Additionally, dataset groupings ...

On March 21st, 2025, also known as World Down Syndrome Day, the National Institutes of Health (NIH) announced the launch of the new and improved DS-Connect®: The Down ...

On March 8, 2025, the Emory University School of Medicine's Down Syndrome Center hosted the 2025 Emory Down Syndrome Research Symposium at the Emory Conference Center in Atlanta, Georgia ...

The inaugural INCLUDE DS-CDP Network meeting took place virtually on February 11 and 12, 2025, bringing together an unprecedented group of experts to facilitate research that will impact the ...

The INCLUDE Clinical Data Management Workshop was held virtually on Monday, February 10, 2025, and was organized by the NIH INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to ...

Join the INCLUDE Data Coordinating Center (DCC) for a virtual INCLUDE Data Hub Webinar on Wednesday, April 16, 2025, from 12:00 - 2:00 pm ET.

Get ready for an exciting day of learning and connection at the Emory Down Syndrome Parent & Caregiver Research Symposium on Saturday, March 8!

The INCLUDE Data Coordinating Center host its office hours on the second Wednesday of each month from 12:00 to 1:00 pm ET.

This workshop, organized by the NIH INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project will focus on common data elements, clinical data ontologies, data ...

Exciting announcement: the new and improved DS-Connect®: The Down Syndrome Registry, is live!DS-Connect is currently managed by the University of Colorado and offers upgraded features to ...

The INCLUDE Data Coordinating Center (DCC) and Kids First Data Resource Center (DRC) hosted this year’s New Research Gold Rush Ancillary Event on Thursday, November 7, 2024, during the ...

The INCLUDE Data Coordinating Center (DCC) is excited to host a two-week immersive summer course in data science, Data Science for Developing Scholars in Down Syndrome Research (DS3), from ...

Based on recommendations from the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Office of Data Science and Sharing, the INCLUDE Data Coordinating Center (DCC) and ...

The National Institutes of Health (NIH) recently launched a new long-term study led by NIH’s INCLUDE Project to observe and track health data of people with Down syndrome ...

Join the INCLUDE Data Coordinating Center (DCC) for a virtual INCLUDE Data Hub Webinar on Wednesday, October 16, 2024, from 3:00 pm - 5:00 pm ET. 

Join the INCLUDE Data Coordinating Center (DCC) at the ASHG Annual Meeting in Denver, Colorado from November 5-9, 2024. You can stop by our booth and register for our ...

The INCLUDE Data Coordinating Center (DCC) attended the 2024 Down Syndrome Diagnosis Network (DSDN) Rockin' Mom Retreat in Las Vegas, Nevada from September 27-28, 2024.

The INCLUDE DCC attended the National Down Syndrome Congress (NDSC) Convention and Down Syndrome Medical Interest Group (DSMIG) Symposium from July 25-28, 2024 in Phoenix, AZ.

The INCLUDE Data Hub has released new data to the INCLUDE community!