2023 International Mosaic Down Syndrome Association Community-Empowered Research and Retreat Weekend: Increasing Partnerships, Cohorts, and Diversity for Research Related to Down Syndrome

Jackson Cook, Colleen K


This conference provides an innovative approach for advancing research participation opportunities and knowledge sharing related to mosaic and non-mosaic Down syndrome, by bringing researchers/professionals to self-advocates and their family members/care providers in a collaborative and supportive setting that is most convenient for the participants. This conference will also: (1) build and/or expand relationships among researchers, clinicians, social scientists, educators, and members of the mosaic/non-mosaic Down syndrome community; and (2) provide a means for reducing disparities in knowledge and/or research participation opportunities by focusing on the inclusion of people who have an uncommon form of Down syndrome (called mosaic Down syndrome) and by targeting recruitment activities and strategies to enhance the inclusion of participants and trainees from minority groups.