Event Recap: 2023 National Down Syndrome Congress (NDSC) Annual Convention

In July, the INCLUDE DCC was part of the National Down Syndrome Congress (NDSC) 51st Annual Convention in Orlando, Florida. More than 5,000 people with Down syndrome and their families from across the globe attended the convention this year to hear from renowned experts in Down syndrome and have fun with others in the community.

Joaquin Espinosa, Ph.D., leader of the INCLUDE Data Coordinating Center (DCC) Administrative and Outreach Core, gave a first-of-its-kind presentation in Spanish that was translated live to English to a packed room. In his presentation titled: Groundbreaking Discoveries: How Science is Helping People with DS Live Longer, Healthier Lives, Dr. Espinosa spoke about the importance of people with Down syndrome participating in clinical studies, explained how the INCLUDE DCC is accelerating the study of co-occurring conditions of Down syndrome, and gave a live demonstration of the INCLUDE Data Hub. He also gave a similar presentation in English at the GLOBAL Medical Roundtable hosted by the Global Down Syndrome Foundation.

Image of Dr. Joaquin Espinosa presenting at the 2023 NDSC Annual Convention.

Image of Dr. Joaquin Espinosa standing with self advocate Edwin Marcelo.

Additionally, INCLUDE Investigator, Dr. Jonathan Santoro, Children's Hospital Los Angeles, and the NIH INCLUDE team members Melissa Parisi, MD, Ph.D., Marishka Brown, Ph.D. and Linda Garcia also presented some important research being supported by INCLUDE. Dr. Parisi and Ms. Garcia gave a presentation titled: The NIH INCLUDE Project: Investing in inclusive research that matters to you and your family.

Our team also had an INCLUDE DCC booth where our portal experts demonstrated the INCLUDE Data Hub and answered questions.

Image of INCLUDE DCC team member posing with self advocate at the INCLUDE DCC booth at the 2023 NDSC Annual Convention