The National Down Syndrome Congress (NDSC) held its 53rd Annual Convention, the largest of its kind globally, welcoming individuals with Down syndrome, their families, caregivers and professionals for a meaningful and educational experience in Dallas, TX, from July 24 to 27, 2025. The INCLUDE Project was represented by the INCLUDE Collaboration for Down Syndrome Progress (CDP), DS-Connect and INCLUDE Data Coordinating Center (DCC) booths, as well as nine presentations!

  • Joaquín Espinosa, PhD - New Breakthroughs in Down Syndrome Research: Latest Discoveries and Clinical Trials
  • Laurie Ryan, PhD - Investigating conditions that affect individuals with Down syndrome across the lifespan: Insights from the INCLUDE Project
  • Marishka Brown, PhD; Nirmala Nirinjini Naidoo, PhD; Brian Helsel, PhD, MS, CSCS; Andrea Kelly, MD, MSCE - Sleep and Its Role in Heart and Brain Health for Adolescents and Adults with Down Syndrome
  • Bryanna Schwartz, MD; Tracie Rosser, PhD; Jessica Hunter, PhD - The NIH INCLUDE Project and the Collaboration for Down Syndrome Progress: Transforming Research for Down Syndrome
  • Joaquín Espinosa, PhD - Investigación internacional sobre el síndrome de Down: Estados Unidos, América Latina y más allá
  • Jamie Doyle, PhD; Ruth Brown, PhD; Eric Rubenstein, PhD, ScM; Benjamin Golden; Lauren Ptomey, PhD, RD, LD; Amy Bodde, PhD; Sigan Hartley, PhD - From Discovery to Practice: Key Research Findings to Improve Mental Health and Quality of Life in People with Down Syndrome and Their Caregivers
  • Joaquín Espinosa, PhD; Eileen Quinn, MD - Regression in Down Syndrome - What Is It and What Do I Do About It?
  • Joaquín Espinosa, PhD - The Latest Discoveries in Down Syndrome Research: Cutting-Edge Clinical Trials and Groundbreaking Results
  • Erika Tarver, MPH; Anna Esbensen, PhD; Marie Moore Channell, PhD; Deborah J. Fidler, PhD; Nicole Baumer, MD, MEd - Evidence-based Solutions for Challenging Behaviors and Developmental Concerns in Children with Down Syndrome

At the NDSC Convention, the INCLUDE DCC booth was a hub for meaningful conversations with families, researchers, and professionals. Attendees shared their stories and learned how INCLUDE DCC is advancing research to improve the lives of people with Down syndrome. The event also strengthened our network of collaboration, supporting progress toward our shared mission.

The INCLUDE DCC exhibitor booth at the NDSC annual convention.